Par for the Course

11/2/11:  3:11 P M

I think I spoke too soon.  Davis and I did spend most of Tuesday resting. I called to the clinic at around 3 PM to get clearance from returning to the ER in the case that Davis developed another fever in the evening.  At 3 PM, I was told that Davis could stay home and even go to school with low grade fever. I was to bring him to the ER if he spiked a fever of 103 or greater. Sarah Bush was growing cultures which yielded no infections, and Davis had some massive antibiotics pumped into him the last two nights.

A little after 5:30 PM, the clinic called me back to check on Davis.  I told the nurse that Davis was fine. He was still running a low grade temp and had some chills, but overall, he seemed ok. The nurse put me on hold while consulting the doctors. She then informed me that it was necessary for me to bring him back to Sarah Bush for more cultures and antibiotics. There was a concern because the antibiotics should have broken the fever. Although Davis's ANC is still well above the healthy norms and he is feeling relatively well, he was transferred to Children's a little after midnight. This is a precautionary measure to make sure that the fever isn't an indicator of something more serious.

Once again, the cause of the fever is unknown. Since the fever continues to be low-grade and disappears during the day, there is a good chance that it is some type of viral infection. This would also explain why the fever hasn't subsided with the antibiotics. But you never know, so that is why we are here. As of now, the plan is for Davis to avoid a fever for 24 hours, and then we will be able to be discharged.

Since Davis was not neutrapenic (ANC below 500), we were able to be transported by the Charleston Fire Department. This was wonderful, because otherwise, we have to hang out in the ER until an ambulatory unit from St. Louis arrives.  Not only did we not have to wait for transport, we knew the EMTs transporting us. They were awesome. It may sound weird, but it was such a comfort to have some familiar faces on the 9W floor for however brief an amount of time. It was like a little bit of home was witnessing the part of our lives that most don't see, but only hear about. Thank you, Ben and Kirby.

Unfortunately, Davis has fallen into his normal hospital behavior, and fortunately, we have Elise. She is a pretty, little 20-something nurse who isn't phased by Davis's poor attitude and weeping moments. I love her; Davis loathes her. Well, that may be a little dramatic. Let's just say, she wins every argument and completely eliminates Davis's excuses and say-so. For the twenty minutes that Davis was awake this morning, he cried and fought through his medications. He told me that he wasn't going to eat or take his meds until he got out of this place. My son is very intelligent and rational, but it is clearly not demonstrated during hospital stays. Well, Elise got him to take his meds before he was sedated with IV Benadryl. The IV Benadryl helps with his nausea and helps him to relax and pass the time in the form of sleep. He hasn't eaten anything, and drinking is minimal. He has been sleeping  for the last four hours.

Please pray that the cause of this fever is found and/or that is goes away and stays away. Sometimes it feels like we take two steps forward only to take three back. While we are inconvenienced to be in St. Louis again. I am glad to be here so he can be properly cared for. Plus, three nights in the ER was starting to wear on both of us.

Thank you for the prayers and positive thoughts that you have said on Davis's behalf. We know that this sickness - whatever it is - is minimal because of your support and because God answers prayers and has His hand on Davis. 

Looking forward to coming home soon. We will keep you posted.

Wow! What a Weekend!

Davis and Wade

11/1/2011:  12:55 PM

Friday . . . . Halloween Party!  Davis was thrilled that he didn't have chemo scheduled on Friday. This allowed him to go to school and celebrate Halloween with his class.  He had a blast.  The students changed into their costumes, walked around the Charleston square, and then celebrated with Halloween games and a movie.  By the time early dismissal hit at 1:00 PM, he was wiped out. Friday night was dedicated to rest and the World Series game. The kids were both in bed before 9:00 PM, and I fell asleep during a commercial break at the bottom of the seventh inning. I can't tell if that is a sign that I am getting old or if it is a sign that I am really tired.  My mind has convinced me to think that latter.

Wade "mummyfying" Davis

On Friday, Davis had a CBC (blood work) and a CMP (complete metabolic panel) done. We had expected his counts to drop because of the chemo he had the previous week.  Naturally, I was surprised and concerned when I was told that his white blood cell count was over 4 (healthy kids are between 5-10, and Davis usually hovers in the 1-2 range), and his ANC (immune system)  was over 4000 (healthy kids are over 1500).  The clinic had no concerns. It was their stand that he was very healthy, and we were encouraged to enjoy the rise in counts. Kyle reminded me that the huge count jump had happened before  -- right before Davis had developed an infection.

Saturday . . . The kids and I were able to attend part of the Tri-County play-off match up with Arcola. Since Davis has limited energy, we took along a walker that has a built-in bench. He can walk with the walker if he needs it, but he prefers that he sits on the bench while we push him around. The bench seat also allowed for him to sit along the fence line to watch the game, if that is what you would call it.  He did more eating and visiting than he did game watching. Davis spent every bit of energy he had and was ready to leave during the third quarter, so we cheered the boys on listening to the radio on the ride home. Despite the sad loss, the Titans had an amazing season, and we were proud to cheer them on this year.

a doctor and a gypsy-pirate

Saturday afternoon was nap time.  Saturday evening brought a bit of trick-or-treating. We only made it to two houses, but the kids didn't mind. Davis doesn't eat candy, and Annakate doesn't eat much. The kids always enjoy going to the Ashmore Community Center for a little contest, so we did that. We were home by 8:30 PM, and both kids were worn out.

Sunday started with our normal routine, but after church, Davis was extremely nauseous. He slept most of the afternoon away. I checked on him periodically and noticed that he was running a bit warm.  Yep. He had fever.  The fever was low-grade, and he was under blankets, so I didn't stress over it. There is a rule for fevers for kids with cancer. You are to call to Children's if the child has a fever of 100.4 or so for more than a couple of hours. If the fever hits 101.4 just one time, you are to call to Children's. Kids with cancer run the risk of a port or line infection, which can cause sepsis (blood poisoning). Cultures have to be grown to rule this out. There is bigger risk of problems if the child is neutrapenic (has an ANC below 500), because the child can't fight infection off by him/herself. Annaakate and I attended evening church, while Kyle stayed home with Davis. Near 8:00 PM, Davis' fever climbed up to 101.8.  That warranted a call to Children's. The protocol after that is to head to Sarah Bush - the local ER - where a CBC is taken and a culture is started.  Sarah Bush is in close contact with Children's and together they create the plan. The CBC on Sunday night proved an even higher ANC than Friday. This means that Davis's body is healthy enough to fight infection assuming it is not a port/blood infection. He was treated with a bag of fluids to ward off dehydration and a broad spectrum antibiotic.  Davis and I made it back home at 1:50 AM.

Monday . . . Davis and I headed down to St. Louis for a morning chemo appointment.  We were both exhausted. I didn't have the luxury of sleeping, so I hit scan on the radio and enjoyed the views.  Many might go crazy fishing through radio stations, but I enjoy it. I heard "Thriller" (parts of it anyway) 13 times, which tied with Adele's song, "Someone Like You". I counted 11 dead deer, 2 dead coyotes, and 2 unidentifiable creatures. The trees and the fields are growing bare, and it seems that the road construction continues to flourish.

Annakate trying her
hand at being a
ventriloquist

We were only in clinic for about an hour. Of course, he had no fever during the visit, and no one seemed concerned about it assuming whatever the cause was treated by the antibiotics and behind us.  He weighed 55 pounds still.  The bright side is that he hasn't lost weight this last week, but the dark, depressing side is that he hasn't gained any either. Davis slept the entire way home, and I fell into my pattern of listening and watching all the way home.

When we were finally home, Davis watched some TV, Annakate worked on her homework and chores, and I took an hour-long nap. A much needed nap. I told the kids that an uninterrupted nap would be the best birthday present from them (Oh yeah, did I mention that yesterday was my birthday?  It was perfect, but not in the traditional sense.) I think they thought that the nap was a win-win, so they let me sleep.  It was a good thing I did, because Davis' fever spiked again. By Children's Hospital doctor's orders, we headed back to Sarah Bush for more blood work, cultures, and antibiotics. They were swamped, and that is putting it mildly. We arrived a little after 7:00 PM, and made it home at midnight. Since his ANC was so high and the cultures didn't show anything growing, Davis avoided another transfer to St. Louis.  Yay!

Davis and I slept in today. The morning was spent eating and working on homework.  He is trying to get and stay caught up with school work.  We both hate that feeling of having something hanging over our heads.  He was planning on going to school at noon today but was overcome with exhaustion and fell asleep working on science homework around 11:30.  I didn't have the heart to wake him up.  I think that we will rest and catch up today, and he can head back to school tomorrow.  His fevers tend to surface at night, so we will see how tonight goes.

Fevers . . . Fevers indicate infections. This is where it becomes frustrating as a parent. I want to know what causes the fever. And often with healthy children, we know because our children develop symptoms or are teething, etc. But with a child with Leukemia, the simple truth is that more times than not, there are not explanations. We don't know how Davis developed Leukemia, we don't know what caused his illness and week-long hospital stay a couple of weeks ago, and we don't know what is causing the fever now. The unknowns are scary.  It takes a leap to rely on the doctors and adopt the if-they're-not-worried-I'm-not-worried mentality, because the bottom line is that it is not their baby. They haven't invested their hopes, dreams, prayers, hours of worry and concern, and tiring efforts into this little life. It takes a trust that I have never known to rely on my faith, and that whatever it is - illness, fever, virus, bacterial infection - God knows, and he will take care of it. And I guess what adds to the frustration is that Kyle and I have always been problem-solvers, fixers, doers, and when Davis is sick, we don't know how to fix it, and there is nothing we can do to make it go away or to take away any of these experiences for him. However, each day brings added blessings, and this journey continues to change us for the better. 

Davis will have his next chemo treatment ten days from now. It will be a two-day treatment with the horrible Peg shots coming on the second day.  Please pray for his mental and physical strength. These shots are extremely painful, and it seems that the pain is worse each time because of his loss of leg muscle and increase chemo dosage. We are going to enjoy the spacing in chemo to lead normal lives. This weekend, we saw glimpses of our old normal life (going to the game, school parties, etc), and it was almost like an affirmation that this cancer experience will be behind us soon. Affirmation, not wishful thinking.

We have seen the power of prayer. Davis is doing so well with a great ANC despite having some kind of infection somewhere. His mouth sores are practically gone. He has an appetite, and he has even had a little hair growth.  Yes, despite receiving the hair-loss causing chemo every ten days, Davis still has hair!  We thank you all for your support.  We couldn't imagine trying to do this without your positive thoughts, concerns, and prayers.

Oh, I nearly forgot. The Times-Courier/Journal Gazette, our area newspaper, ran a very nice story on the efforts put forth by the Oakland and Jefferson schools to support Davis. Kudos to Rob Stroud. Special thanks to the schools, the students, and the communities that make Davis feel so welcome and loved.  I am attaching the link; just click on it to view.

School communities come together to support child's leukemia fight

We will keep you posted.

Team Davis T-Shirts

A few people have mentioned that they were unable to find the order forms for Team Davis t-shirts. I assume that the information was buried in a post somewhere. 

If you are interested in ordering a shirt, you may do so by clicking on the link below, printing the form, and mailing it and payment to Mandy Hanner, c/o Oakland High School, P.O. Box 378, Oakland, IL 61943.

Team Davis T-Shirt Order Forms

Just a reminder that the orders are due on Monday, October 31.
Also, for those who do order shirts, feel free to email, mail, or facebook (can that be used as a verb?) me a picture of you in your Team Davis t-shirt. I am going to make a photo album/memory book for Davis from his supporters and prayer warriors. Please specify if you do not wish for your picture to be posted on the blog; many pictures end up here. 

email: abcoffey77@gmail.com

address:  9208 N Co Rd 2270E, Ashmore, IL 61912

The Week Keeps Getting Better

10/27/2011: 11:33 AM

The week started out a bit rough but continues to improve.

Davis was very nauseous and tired on Sunday evening and decided to regress to some behavior we thought was behind us.  He refused to take his last dose of medication. After hours of pleading and arguing, Davis was so worked up, he was out of control. Near midnight, Davis had a panic attack and couldn't breath. The thought of Davis suffocating terrified me, and I called 9-1-1 while Kyle worked on settling him down by encouraging deep, slow breaths. Thankfully, Davis was able to calm down before an ambulance was dispatched. Davis finally relaxed enough to fall asleep in the recliner in the living room. He never did take that last dose of medication. Luckily, it was a side effects medication and not chemo medication. The house quieted down and all were asleep by 1:00 AM. Poor Annakate! There was no way she could sleep through all of that chaos, though she didn't complain. She has such a tender heart. She worries as much for Davis as we do. 

Wii = PE at home

Monday. The night before had been erased from his memory and the new day brought with it a better frame of mind and a good start. We were headed to Charleston when I checked in with his school. Sadly, there were several students who were out sick from his class or exhibiting signs of sickness in his class (little coughs, headaches, scratchy throats).  Davis had to stay home. Davis might feel great, but since his immune system is suppressed, he is at greater risk for catching a virus or infection. Since he is unable to fight off infection by himself, he has to be hospitalized so the doctors and medication can fight the infection/virus for him. So there are times when he is perfectly well and capable of going to school, but the health of others prevents that. It's inevitable; kids get sick. Davis, however, didn't handle Monday well.  He didn't see how it was fair that he had to stay home. His "not fair" list has grown longer and longer over the past few months, and I get sad for him and for me that I can't fix some of the injustices that go along with cancer and its treatment. The only comfort that I can offer him is telling him over and over again that this is not permanent, and this will not last forever, but to a 10-year-old, I am sure that it sounds like too much of a cliche to be true.

On Monday, he devoted himself to school work, Wii playing (I told him that it was his PE time), and sitting around and complaining in true 10-year-old fashion.

On Tuesday, he went to school. The kids in the class are feeling much better and  appear healthy. Davis takes a few more extra precautions to be at school (wears mask all of the time, extra hand washing, etc), but he is so happy to be back. He has been attending school all of this week.  He fizzles in the afternoon. He doesn't really have the energy to sustain the activity of a full day. On Tuesday, he took a nap at school. On Wednesday, I picked him up early so he could come home and rest. That's ok. He loves school, and he loves being there.

Davis's appetite has increased some. We can relax a tad because he is eating and choosing healthy choices, but I can't truly relax until he starts putting on weight. We head to the little convenience store in our village, I and I Deli, and Davis orders a hot ham and cheese sandwich every morning. I offer to make him hot ham and cheese sandwiches, but Davis seems to think that no one can make them as good as Tim can, so we will continue to eat Tim's hot ham and cheese sandwiches as long as Davis craves them. His appetite seems to be the best on the morning and decreases as the day moves along.

What else is going on? Hmm. Annakate received a trophy in the mail for being a good sister to Davis. She is enrolled in this organization called SuperSibs. The organization sends her something to make her feel special about every month. This is such a great program. I hate to admit it, but I don't find myself doting on Annakate like I used to. Instead of doing her hair in the morning, I am getting Davis dressed or giving him his medication. Instead of reading her bedtime stories, I am helping him with his homework. While Kyle and I do make an effort to devote individualized attention and time to her, the program helps us by surprising her with encouragement. Plus, she feels so important.

We love living in the country. We have fantastic neighbors (In the country, everyone within a five-mile radius in any direction is your neighbor.) who look out for one another, and the space allows the kids to run and explore. I love the opportunities that country living and nature provide to my children. The wildlife alone creates our own hands-on encyclopedia. Over the course of a week (depending on the season), it is not uncommon to see hawks, owls, vultures, quail, deer, raccoons, stray cats, skunks, opossums, snakes, and coyotes in our yard. Yesterday was no exception. My normal morning routine includes opening my kitchen blinds allowing the natural light to flood in to warn everyone -mostly me- that morning is indeed here. I think I gasped before a smile broke across my face when I saw our neighbor's horse grazing by the trampoline.  What a delightful surprise to the morning! No worries. I called my neighbors and the horse was home safely in its fence in no time. I sure hope the horse manages to make it over again sometime. I think my neighbors sure hope it doesn't.

Tomorrow, Davis will get a CBC. We should know where his ANC (immune system) is then. The chemo last week should have made it drop, but we don't know how much. His ANC and his overall health will determine how much he can do this weekend. We have never really trick-or-treated in the traditional sense. We usually stop by a few houses that belong to family members. Davis doesn't eat candy, chew gum, or suck mints (We let him; he just doesn't like that type of stuff.), so he doesn't really care to trick-or-treat. I think a great deal of the weekend will be devoted to make-up school work from the two weeks that he missed. We will head down to St. Louis on Monday for chemo. He plans on wearing his Halloween costume, a doctor, to clinic. 

My kids love Andy Anderson. Andy makes some great
balloon creations. Davis asked for a circle, and Annakate
asked for a square. They thought that was hilarious.

Davis has developed mouth sores (very common). He has been pretty fortunate to not have too many until now. I believe that it is the methotrexate that he receives in his port that is causing them, because that was the only new chemo added. Methotrexate causes mouth sores. He has been faithfully using Biotene for months, but it simply isn't enough. He has started using a rubber-finger style tooth cleaner for infants, because even the softest of toothbrushes still cause his mouth to bleed. The doctors will check out the mouth situation on Monday. I hate it that he has mouth sores. I don't want anything to hurt him or impede his ability or desire to eat, but I can't help but think that if this is the worst of it, he is still very blessed.

We continue to pray every day for our son. We still pray against side effects, for Davis' emotional well-being, for the health of the kids in which he comes in contact, for healing and CURE. I can't help but feel that there are many life lessons to be learned from this experience, and I thank God for the blessings - the silver lining in all of this - that we have received and continue to discover. We still pray for courage, strength, and endurance, because sometimes they appear to be in short supply. We know that we still have such a long road ahead. We are so moved by your thoughts and prayers. I can only imagine how families are crushed under the weight of carrying this burden - this battle - alone. We are overwhelmed and grateful for the support we have. Not one day goes by that we don't feel both amazed and unworthy of your relentless thoughts and prayers.

We will keep you posted.

Trying to Find That Routine Again

10/23/2011: 4:00 PM

I apologize. I only have a few minutes, so I will try to give my best to give a detailed abbreviated version. 



another long day of chemo



I did not go to chemo on Friday. Davis, Kyle, and my mom set out at 5:00 AM for the long day. I stayed home and ran some errands, attended a parent/teacher conference, and spent some quality time with Annakate.  To our surprise, Davis weighed 55 pounds! 55! He has lost nearly 25 pounds and weighs less than his seven-year-old sister. The doctors don't seem to be as worried as we are, so I guess that is a good thing. Davis did well without me being there. He sailed through his chemo.When it was time for the Peg shots, Kyle called me and put me on speaker phone, so that I was there to cheer and comfort Davis. Davis took the shots well. He cried, but I think anyone would. They were able to leave the hospital around 4:30, and they made it home between 7:30 and 8:00 PM.  A very long day.

tent's looking a little crowded

Annakate and I enjoyed our time together. I ate lunch with her at school, and when I picked her up afterwards, I let her decide what we were going to do. Shopping? Manicures?  Go out to supper?  Nope. She chose pie baking. We had a blast making a huge mess.  She did it all, and I, of course, was her assistant. She really enjoyed making the crust and peeling the apples, and we hurried to get it finished before Davis made it home. It was to be his surprise. I giggle a bit at the irony that Annakate doesn't like apple pie and won't eat any of it.  I guess the joy is in the baking.  And by the way, it's delicious.  I posted some cute pictures below.

The doctors have started taking metabolic panels to keep an eye on Davis's liver function. Many of the different types of chemo can cause potential problems with the liver and kidneys. The CMP test will measure the drug toxicity in his body. Kyle brought home the first report, and there are a great deal of levels that are out of whack. I plan to call the clinic tomorrow just to hear a professional reassure me that this is normal and there is no long-term liver damage going on.

This morning we went to church as a family. It was the first time in a long time. When Davis is sick or his counts are low, one of us stays home (we rotate) with him, and one of us takes Annakate. We are aware that his counts will start to drop because of the recent chemo (usually takes a few days), so we took advantage of the opportunity.

Davis still continues to sleep a lot. He just can't find the energy to sustain himself for long periods of time. Provided that his class is well -- there were many sick last week -- he is planning on trying to go to school tomorrow. I am not sure if he will make it a full day; he many not have the energy to complete a whole day. School does help him keep his mind off not feeling well, and he is far more productive at school than he is at home.

I want to take a minute to thank the Oakland school and community.  I was able to stop in on Friday for a visit. Some of the teachers and students made Davis a giant poster with well wishes on it. He loves it. It is hanging in his room.  The Oakland community also collected nearly 200 new hats for a "Hats Off for Cancer" drive. Davis will be donating them to the Children's Hospital on their behalf.

We continue to feel such love and support, and we are so grateful for it. We appreciate your prayers and positive thoughts, because that is what is getting us through this.

Hoping and praying for good health and a productive week.

We will keep you posted.

Feels Like Snow Days Around Here

10/20/2011:  9:54 PM

We were released from the hospital a day earlier than scheduled. Davis's ANC was 240 and on the climb. He was given the orders to eat and rest. He was homebound while his counts were building. The goal was to get his ANC over 750 and his platelets over 75 so that he could receive the chemo that he missed last week. 

The last two days have felt like snow days. We were all home together for huge chunks of time.  Davis couldn't go to school because of his counts, Annakate was dismissed at 10:50 every day because of parent-teacher conferences, and Kyle was in and out on account of the rain. I love it. The kids have built tents, played Wii, completed projects, wrestled, etc. It's been fun - and loud.

One of the highlights of the last couple of days was when Davis's friends, Wade, Gage, and Drew, popped by for a quick visit. They were running around in no time. Davis was able to get the scoop on what he has missed in the last two weeks at school.  I love how the boys just pick up where they left off and no matter how pale, thin, or sick Davis is; it doesn't seem to phase them. 

Davis is still struggling getting his days and nights straightened out. He goes to bed at 1:00 or 2:00 AM and attempts to sleep in until 9 or 10 AM. I try to wake him up at a decent time but it is near impossible. We send him to bed at a decent time, but he manages to keep busy with a notebook (writing and journaling) and a flashlight.  The English teacher loves this, but the mom wants him to sleep.  He has draped blankets from his top bunk down around his bottom futon bed. Then, he placed a card table inside of the tented area and draped more blankets over the card table.  It is inside the tent within tent that he sleeps. It is a struggle to check on him because of all of the blankets.  I tried to lay down in it for awhile- you know, to encourage him to go to sleep, but it was simply too small.  My days of sleeping under blanket-covered card tables are long over.  I headed back to my bed. I am sure it is a mom thing, but I can rarely sleep when my kids are awake, so I would get up and check on him every twenty minutes or so. Finally at 2:20 AM, he was out.

Annakate is doing quite well in school. We are so proud of her. I was a bit worried because we have pushed a lot of the school/homework/reading responsibilities back on her. We struggle sometimes to keep the school routine of studying for tests and reading that we kept in past grades. It is such a relief to see that she is a very bright girl who has managed to do well despite not receiving the one-on-one attention that we have given to her and her schooling in the past. 

Davis has been craving spicy foods as of late. The docs and nurses say that this is pretty normal. Chemo changes and kills the taste buds, and people tend to crave spicy food because of the taste. Davis has eaten a lot of Thai, Mexican, and chili the last couple of days. We don't mind at all. We are thankful he is eating.

Davis went to Sarah Bush and had a CBC (blood panel) and a CMP (checks metabolism and nutrients in his blood). His blood was a bit problematic. At first, it was runny and then it was clotty.  The lab tech finally was able to get enough after a few finger pricks. St. Louis called us a short while later with some awesome news. Davis's counts are making a quick comeback. His white blood cells were up from .8 to 2.8 (healthy kids range between 5 and 10). His hemoglobin was holding at 10.3. His platelets were up from 64 to 160 (healthy kids range between 150-450), and his ANC was 1148!  His ANC was 240 on Tuesday and was 0 one week ago (healthy kids are greater than 1500).  Even though his counts will take a hit from the chemo tomorrow, he is cleared to go to school on Monday as long as there are no sick children in his class. 

Tomorrow, Davis will receive his chemo via his port at 8:30 AM. He will then receive chemo via spinal right before lunch. He is still placed under anesthesia for the spinal taps.  Between 4 and 5 PM, he will be given the Peg shots, and he will be allowed to come home. Typically, there is  24 hour wait between the chemo injection via port and the Peg shots because the Pegs can weaken the effect of the methotrexate that is shot into the port.  However, they are very confident that the time they are giving between the doses is sufficient. I pray that they are right. I am still a bit nervous. The longer the wait, the better, I think.

We still continue the same fervent prayers that we have prayed from the get-go. We pray that Davis is spared from short term and long term side effects. We also pray for his overall health and the health of his classmates, so that he may attend school for as long as possible (and we want his classmates to stay healthy too. It isn't fun being sick.) Most importantly, we pray for his overll well-being, healing, and CURE.

I know I have often shared the fact that I draw strength and comfort from music. A few weeks ago, we sang a worship song at church that we sing every so often. It is pretty popular; it is called, "Healer" by Hillsong. Honestly, I had forgotten about this song until we sang it the other night. I'm not sure what it was about that night, the song, the heaviness of my heart, but it was like the song was written for me. It was as though it was crafted and existed for me when I was ready to need it. Over the last few weeks, that song has been swimming around in the back of my mind. When Davis was in the hospital and the doctors couldn't get the fever to break, when he would cry in my arms because the homesickness was too much for him to bear, when I was tired and the weariness began to deplete my patience and faith, I would sing, hum, whisper this song. I guess every person who has been on this road finds their escape - their way to cope. I think God provides me the music - the songs - because he knows best how to reach me. I am grateful.

I am attaching the lyrics and the link with the hopes that this might bless someone else who is struggling.

Healer

Hillsong's Healer

You hold my every moment
You calm my raging seas
You walk with me through fire
and heal all my disease

I trust in You
I trust in You

I believe You're my healer
I believe You are all I need
I believe You're my portion
I believe You're more than enough for me
Jesus, You're all I need

Nothing is impossible for You
Nothing is impossible
Nothing is impossible for You
You hold my world in Your hands

For me, the last line here says it all.

Again, we thank you all for everything. We appreciate and feel your positive thoughts, love, and prayers.

We will keep you posted.

Hospital Visitors: Grandpa and Grandma Fanello

Hospital Visitor: Uncle Randy Coffey

Hospital Visitors: Grandpa and Grandma Coffey

This was my view for nearly 15 hours every day
while Davis was in the hospital

The long-awaited smile. Getting ready to
leave the hospital.

Homeward Bound . . . Maybe

10/18/2011:  10:15 AM

Davis is feeling so much better. He has conquered nearly everything on his checklist to be released from the hospital. His ANC (immune system) was in the 60s yesterday, and today it is over 200! No fever for over 48 hours now. The nurses seem extremely confident that we will be released today despite Davis not having an ANC over 500.  They are under the impression that Davis can count build at home.  We are still waiting to hear from the doctors. They make the call. 

The biggest stress yesterday was finding a hotel in the St. Louis area for Wednesday evening.  Davis has to be back at the hospital at 6:45 AM on Thursday for a spinal, so it makes sense to spend the night before. I am not begrudging the Cardinals of their success by any means, but our timing and their World Series timing collided.  After some frustration, I left the task up to Kyle, and he found us a room.  Thanks, honey.

Davis managed to do a bit of homework and eat some yesterday evening. He has his days and nights mixed up too. He was awake from 5:00 PM to nearly 1:00 AM.  He watched a couple of movies and tinkered around during that time. Of course, he is asleep now. He is doing a better job at taking his medication too. It is still a drawn-out process.

Wait. . . Talking to the nurse . . .We are going home! Today!  The doctors have moved his LP (spinal tap) to Friday because they are pretty sure his ANC won't be over the needed 750.  With the chemo starting on Friday, Davis will have to be admitted again on Friday evening (or Saturday morning) to receive Day 2 of chemo - the dreaded Peg shots.  Since the clinic will be closed on Saturday, he will have to receive them in-patient.  Because of Davis's anxiety, the doctors have given us the option to stay in a hotel on Friday evening.  Davis would come in on Saturday morning and be admitted for the day. Ahhhhhh.  I can't wait to sleep in my own bed and see Annakate. I am not looking forward to the three hour trip home and the road construction, and from what I have heard, it is freezing outside. When we were admitted last week, it was nearly 80 degrees. Needless to say, I am a bit underdressed for the weather. I am still in flip-flops. Poor planning, I guess.

Nothing else going on. We will hopefully be discharged sometime this afternoon.  Past practice has usually been between 3:00 and 5:00 PM.

Thanks for all of your prayers and positive thoughts.  You are fantastic at rallying around us in our time of need.

We will keep you posted.